A cancer diagnosis is a devastating thing, whoever you are or
wherever you may be living. Imagine how it would be if you were living
abroad when you were diagnosed, perhaps newly arrived in that country,
unfamiliar with the local health system, far from your networks of
family and friends and unable to speak the language. This is the
situation that some members of the English-speaking population in Basel
are faced with. And it’s this situation that prompted us, with the
active support of Frau Doctor h.c. Susi Gaillard of Leben Wie Zuvor, to form an English-speaking Support Group in Basel.
It all began in 2000 with Joy Stone, a long-time member of the
English community in Basel who, to our great sadness, we lost to breast
cancer in 2005. Joy had attended some of Susi’s group meetings and
realised the value of such special support networks. She explored with
Susi the idea of forming an English-speaking group, and immediately
found a positive echo. A few more of us followed and together we formed
the English-speaking Cancer Support Group Basel (ESCSG).
We are a multi-national group – our members come from the UK, US,
Australia, Norway, Germany, Canada and Argentina – but the link is
English. We get together once a month in Basel, usually for lunch, which
is followed immediately by our meeting.
In addition to this once-monthly support group meeting, we offer
practical help and support, in person, by phone, e-mail or Skype, to
anyone directly or indirectly affected by cancer. We visit in hospital
or at home, or take people to medical appointments, radiotherapy or
chemotherapy. We also help with translation to and from German and
French.
Over the years since the group was formed we have invited specialists
to come and address us on a range of topics related to cancer. Our
speakers have included research scientists (from industry and from
research institutes), oncologists, a radiologist, an endocrinologist, a
plastic surgeon, a specialist in communications between doctors and
patients, an expert in patient competence and complementary therapies
and a specialist in palliative care. In 2008 we held a one-day
conference entitled ‘Cancer Touches us All’, in which twelve different
speakers addressed an audience of around 150 people on different topics
related to both breast and colorectal cancer – the two cancers that most
commonly affect women.
On several occasions in the past year, members of our group have
participated in an ongoing programme at Novartis. The objective of the
programme is to present the perspective of the patient to a wide variety
of people working there – and not only the scientists who research and
make the drugs. These events, in English, take the form of an interview
between the patient and an oncologist, in which the patient is
encouraged to talk about her illness, from diagnosis through surgery and
treatment. It’s been both a demanding and a rewarding exercise, both
for those of us participating and – we’ve discovered from audience
feedback – for those attending. For many of them, this is the first time
they’ve met ‘a real patient’ and heard firsthand of their experience of
cancer.
Last year we were given our own page on the Leben Wie Zuvor
website, and we also set up this blog. Here you will find news of
upcoming meetings and speakers, as well as articles of interest to
people diagnosed with cancer and a full list of resources in English in
our area and on the Web. Increasingly we find that the blog is the way
people find out about our group.
Most recently, as a service to the English-speaking community, we
commissioned a translation of a Patient Decree (also known as a Living
Will) from German into English. This important document, known in
German as Patientenverfügung, now appears in English on the website of the Hospiz im Park.
And in case that all sounds rather serious, we also have fun too.
Taking advantage of Basel’s situation close to some great thermal baths,
we’ve scheduled pampering days out at Bad Bellingen and also at
Rheinfelden. We’ve also profited from the fact that easyJet has now made
Basel a European hub, with short breaks to Rome, Lisbon and Valencia.
And whether it’s a visit to the baths or a naughty weekend away (which
is known in our group as ‘a jolly’), we have learnt that it’s very
special to have ‘time out’ with people who have shared the same journey
through illness.
This year, as we celebrate (a mere) 10 years since our group was
formed in Basel, Leben Wie Zuvor is celebratings 30 years of valuable
work supporting women diagnosed with breast cancer. We salute them for
their example and we thank them all for their warm welcome and support
to us as a group.
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